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Expertise Centre for Rare Heart Conditions Amsterdam UMC

Collaboration

For pharmaceutical partners

Research capacity, registries, and how to work with the centre.

We collaborate on trials and registries for rare heart conditions, within ERN GUARD-Heart and with Dutch partners. Get in touch about cohort access, feasibility and investigator-initiated studies.

What you would be working with

  • 3 Focus areas cardiac disease, rhythm disease, cardiomyopathy
  • 5 Regional partners across Noord-Holland, Flevoland and Twente
  • 24 European reference networks we take part in ERN GUARD-Heart
  • — Patients under care example figure — replace before launch

Research under way

  • Genetic determinants of arrhythmogenic cardiomyopathy

    Recruiting

    Multicentre observational cohort study.

    ERN GUARD-Heart

  • Long-term outcomes after ICD implantation

    Ongoing

    Follow-up of a national registry cohort.

    Netherlands Heart Institute

Get in touch about collaboration

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